General Links
GENERAL INFORMATION
American Cancer Society (ACS)
800.ACS.2345 (800.227.2345)
www.cancer.org
This voluntary organization offers a variety of services to patients and their families with information on local treatment options, services and support groups. Contact their call center 24 hours a day for information on cancer-related issues. Spanish language assistance is also available.
American Institute for Cancer Research (AICR)
800.843.8114
www.aicr.org
AICR supports research and public education regarding the relation of nutrition, physical activity and weight management to cancer. Resources include access to newsletters, e-newsletters and practical advice on living a healthy lifestyle.
Association of Cancer Online Resources
www.acor.org
This non-profit organization brings together a wide variety of online resources designed to provide support to everyone affected by cancer. Resources include access to over 100 cancer related mailing lists as well as general information on cancer.
Cancer.com
www.cancer.com
Developed by Ortho Biotech Products, L.P., cancer.com provides general information on treatment options, side effects and cancer prevention/detection. It also contains a listing of web sites for those whose lives are touched by cancer. The site allows users to customize settings to better meet individual interests.
Cancer Facts.com
www.cancerfacts.com
This online resource for cancer patients, their families, and caregivers is dedicated to delivering accurate and personalized information at a time of need. Owned and operated by NexCura, the site provides access to NexProfiler Tools for Cancer, which assists people with cancer make informed treatment decisions.
Cancer.net
703-797-1914
www.cancer.net/portal/site/patient
Cancer.Net, the patient information website of the American Society of Clinical Oncology (ASCO), provides oncologist-approved information to help patients and their families make informed health-care decisions.
Cancer Treatment Centers of America
800.333.CTCA
www.cancercenter.com/
Link to Cancer Treatment Centers of America’s main website where you can learn more about the sophisticated forms of surgery, radiation, and chemotherapy that we offer in combination with complementary therapies that include; nutrition, spiritual support, mind-body medicine, and naturopathic medicine.
Fertility Centers of Illinois
847-849-1530
www.fcionline.com
Fertility Centers of Illinois, S.C., is one of the nation’s leading infertility treatment practices, providing advanced reproductive endocrinology services in the Chicago area for over 25 years. FCI offers hope to female cancer patients through cutting edge fertility preservation techniques. They have had more babies born than the next ten centers combined with high success rates that are recognized throughout the nation. In addition to a team of nationally recognized reproductive physicians who stay current on the latest technology and procedures, FCI patients have access to many other unique support services, such as professional counseling from a licensed, Ph.D. clinical psychologist, patient advocates and innovative financial options. FCI is part of IntegraMed, the nation's largest and most reputable network of fertility centers and has multiple offices conveniently located throughout the Chicago area.
Human Tribe Project
www.humantribeproject.com
Human Tribe Project is the only resource that enables friends and family to unite and quickly bridge the gap between insurance coverage and real costs, while providing emotional support to a sick loved one along the way. Through HumanTribeProject.com, Tribe Pages are set-up on behalf of a Beneficiary and include the Beneficiary’s story, telling why funds need to be raised. Friends and family are invited to join the Tribe to financially support their loved one through the purchase of Tribe Tags, and to stay connected through the Tribe’s blog, guestbook, moveable web badges and by inviting others to join.
Medlineplus Health Information
www.nlm.nih.gov/medlineplus
A service of the US National Library of Medicine and the National Institutes of Health, this online resource provides physician listings, a medical encyclopedia, complete descriptions on common drugs and supplements, and other resources.
National Cancer Institute
800-422-6237
www.cancer.gov
The National Cancer Institute (NCI) coordinates the Nation’s research program on cancer prevention, detection, diagnosis, treatment, rehabilitation, and control. Resources on this site include: a glossary of cancer terms, NCI’s drug dictionary, information on clinical trials, and fact sheets on a wide variety of cancer issues.
NIH Senior Health
nihseniorhealth.gov/lifeaftercancer/toc.html
Older adults who have survived cancer can find out what to expect once treatment ends in Life after Cancer, the newest topic on NIHSenior Health. Visitors to the site will learn about managing follow-up care, physical and emotional changes, and relationships with family and friends. The topic also addresses how a person's age and health status can affect recovery and survival. This is important information for older adults who make up about 60 percent of cancer survivors and whose cancer treatments may have been complicated by other aging-related health conditions.
Oncolink
www.oncolink.com
This site provides the latest news on cancer treatment, cancer research, oncology advances, and cancer clinical trials.
The Reiki Share Project
630-516-0330www.thereikishareproject.org
The Reiki Share Project is a 501(c)(3) nonprofit organization located in the State of Illinois, dedicated to providing Reiki training and education to groups of individuals and caregivers facing serious illness, disability or trauma. Through our classes and community outreach programs, we teach and support the practice of Reiki, a complementary healing technique that facilitates health and well-being through self-treatment and treatment of others.
Singleton Moms
480.459.0472 (Andy Royal)
www.singletonmoms.org
Singleton Moms is a 501c(3) non-profit organization founded by Andy Royal and Jody Farley-Berens as a living legacy to their friend, Michelle Singleton, a single mother who eventually lost her battle with cancer. For the women on their service, the organization (based in Arizona) provides healthy meals twice a week, $300 a month in financial assistance applied directly towards bills, and monthly house cleaning. The non-profit also provides a database of donated professional services, such as legal and financial services, and a mentorship program for children.
The Healing Project
http://www.thehealingproject.org
The Healing Project is dedicated to providing support, education, resources, and help to those who face life-threatening and life-altering diseases and encourages those who have a personal story to share can submit an essay that will provide insight, hope, courage, and healing to those who may be newly diagnosed or living with the disease. This site contains an extensive list of organizations that provide assistance for a variety of issues which people living with cancer may need to address.
The Leading Mesothelioma Cancer Resource
800-ASBESTOS (800-272-3786)
www.asbestos.com
With more than 3,000 pages of content, this site features information on asbestos, mesothelioma, and other cancers that are caused by asbestos exposure (lung cancer, breast cancer, prostate cancer, etc.). Unlike other sites, Asbestos.com has achieved HON code approval (Health On the Net (HON) Foundation is a not-for-profit foundation that works to preserve the accuracy and trustworthiness of Web-based medical information). This site employs a full staff of writers dedicated to research and writing about asbestos exposure and the diseases that result from exposure to the toxic mineral. In addition, their medical adviser and editor, Dr. Mauricio Salazar,M.D., has worked in the field of cancer treatment for years, has personally reviewed, edited, and approved all medical information on the site.
Your Guide to Cancer Care Online
www.guidetocancercare.com
Created by Cancer Treatment Centers of America and Lightbulb Press, Your Guide to Cancer Care is also available on the Web, including updates, plus additional tools and resources.
CANCER TYPE SPECIFIC INFORMATION
Bladder
Bladder Cancer Advocacy Network
www.bcan.org
888-901-BCAN
(888-901-2226)
The Bladder Cancer Advocacy Network is the first national advocacy organization dedicated to improving public awareness of bladder cancer and increasing research directed towards the diagnosis, treatment and cure of the disease.
Bladder Cancer Web Cafe
www.blcwebcafe.org
The Café is dedicated to providing the latest in bladder cancer treatments, clinical trials and alternatives. It includes e-mail support.
Brain
National Brain Tumor Society
800.770.8287
www.braintumor.org
National Brain Tumor Society brings together the best in brain tumor research and supportive patient services. We offer hope to patients, families, and caregivers during every stage of the treatment journey. We invest wisely and strategically in innovative research that will lead to advances and ultimately to a cure.
American Brain Tumor Association
www.abta.org
800-886-2282
The American Brain Tumor Association (ABTA) is a not-for-profit, independent organization. Not affiliated with any one institution, we serve individuals globally and award funds to researchers throughout the United States and Canada.
Breast
Susan G. Komen for the Cure
www.komen.org
800.IM.AWARE
(800.462.9273)
http://cms.komen.org/komen/index.htm
A toll-free breast cancer helpline (1.800.I'M AWARE) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available.
Colorectal
Colon Cancer Alliance
www.ccalliance.org
877-422-2030
The Colon Cancer Alliance (CCA) is a national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer. In order to increase rates of screening and survivorship, CCA provides patient support, education, research and advocacy across North America.
Colorectal Cancer Network
clickonium.com/colorectal-cancer.net/html
301-879-1500
The Colorectal Cancer Network provides information on cancer news, support groups, clinical trials and more.
Fight Colorectal Cancer
www.FightColorectalCancer.org
Office: 703-548-1225
Answer Line: 877-427-2111
Fight Colorectal Cancer is a 501(c)(3) not-for-profit organization formed in 2005. It is the leading colorectal cancer advocacy organization in Washington, DC, empowering survivors to raise their voices, training advocates around the country, and educating lawmakers and pushing them for better policies. They offer support for patients, family members, and caregivers, and serve as a resource for colorectal cancer advocates, policymakers, medical professionals, and healthcare providers. Additionally, they do everything they can to increase and improve research—at all stages of development and for all stages of cancer.
Gynecological
Gynecological Cancer Foundation (GCF)
800.444.4441
www.wcn.org/gcf
GCF works to increase public awareness of ways to prevent, detect and treat gynecological cancers. They also support innovative research
National Cervical Cancer Coalition
www.nccc-online.org
800-685-5531
First founded in 1996, The National Cervical Cancer Coalition (NCCC) is a growing coalition of people battling cervical cancer and HPV related issues
Ovarian Cancer National Alliance
866-399-6262
www.ovariancancer.org
The goal of this alliance is to establish a coordinated national effort to place ovarian cancer education, policy and research issues prominently on the agendas of national policy makers and women's health care leaders
National Ovarian Cancer Commission
www.ovarian.org
888-OVARIAN
(888-682-7426)
The National Ovarian Cancer Coalition (NOCC) is committed to raising awareness of ovarian cancer in communities across the country and to providing education, support and hope for women with ovarian cancer and their families.
Head and Neck
Support for People with Oral and Head and Neck Cancer
800-377-0928
www.spohnc.org
SPOHNC has concentrated on providing current information for oral and head and neck cancer patients who are trying to gain a better understanding of their illness and their lives. Resources include general information, newsletters, and access to local SPOHNC chapters.
Kidney
Kidney Cancer Association
800-516-8051
www.kidneycancerassociation.org
The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals. We fund, promote, and collaborate with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urologic Association (AUA), and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels.
Leukemia and Lymphoma
Leukemia and Lymphoma Society
800.955.4572
www.leukemia-lymphoma.org
The goal of the society is to find cures for leukemia‚ lymphoma‚ Hodgkin’s disease and multiple myeloma, and to improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation‚ family support groups‚ First Connection (a professionally supervised peer support program)‚ referrals and school re-entry materials.
Lymphoma Research Foundation of America
www.lymphoma.org
800-500-9976
The Lymphoma Research Foundation (LRF) is the nation's largest lymphoma-focused voluntary health organization devoted exclusively to funding lymphoma research and providing patients and health care professionals with critical information on the disease.
Lung
American Lung Association
800.LUNG.USA
(800.586.4872)
www.lungusa.org
ALA is dedicated to preventing lung disease and promoting lung health and provides information on lung cancer research and treatment, tobacco control, asthma, and much more.
The Lung Cancer Alliance
800-298-2436
www.alcase.org
The Lung Cancer Alliance is a non-profit dedicated solely to patient support and advocacy for people living with lung cancer and those at risk for the disease.
Mesothelioma
Mesothelioma Cancer Alliance
www.mesothelioma.com
This site has valuable information for those affected by asbestos cancer.
Mesothelioma Resource Online
www.mesotheliomasymptoms.com/mesothelioma-treatment-centers.
Myeloma
Multiple Myeloma Research Foundation
203-972-1250
www.multiplemyeloma.org
MMRF is the world's number one private funder of myeloma specific research, providing information on clinical trials, research, medical programs, and more.
International Myeloma Foundation
www.myeloma.org
800-452-CURE
(800-452-2873)
The International Myeloma Foundation provides the most up to date and in-depth information about multiple myeloma including research and treatment advances, as well as information about the IMF, upcoming events and research, education, support and advocacy programs.
Oral
Oral Cancer Foundation
949-646-8000
www.oralcancerfoundation.org
The Oral Cancer Foundation is a national public service non-profit organization designed to reduce suffering and save lives through prevention, education, research, advocacy, and support. Resources include general information on oral cancer and access to the patient message board.
Pancreatic
Pancreatic Cancer Action Network
877-272-6226
www.pancan.org
PanCAN's is the premier source of quality education and resources for pancreatic cancer patients, families and health professionals.
Hirshberg Foundation for Pancreatic Cancer Research
www.pancreatic.org
310-473-5121
This organization is dedicated to helping people diagnosed with pancreatic cancer by providing information on nutrition, financial aid, and doctor referrals and by connecting patients with others who’ve been on the same journey.
Prostate
Prostate Cancer Foundation
www.pcf.org
800.757.CURE
(800.757.2873)
The Prostate Cancer Foundation (PCF) is the world’s largest philanthropic source of support for prostate cancer research to discover better treatments and a cure for recurrent prostate cancer. PCF pursues its mission by reaching out to individuals, corporations and others to harness society’s resources— financial and human—to fight this deadly disease.
Sarcomas
The Sarcoma Alliance
415-381-7236
www.sarcomaalliance.com
The Sarcoma Alliance is striving to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support. Resources include links to medical centers, chat rooms, sarcoma-related news stories and a discussion board.
Skin
The Skin Cancer Foundation
800-754-6490
www.skincancer.org
The mission of the Foundation is to decrease the incidence of skin cancer through public and professional education, medical training, and research. Resources include information on prevention, detection and diagnosis of skin cancer.
Thyroid
ThyCa: Thyroid Cancer Survivor's Association
877-588-7904
www.thyca.org
Current information about thyroid cancer and support services available to people at any stage of testing, treatment, or lifelong monitoring for thyroid cancer, as well as their caregivers. This site also serves as a resource for anyone interested in thyroid cancer survivors' issues.
TREATMENT OPTIONS
Cancer Research Institute (CRI)
www.cancerresearch.org
1-800-99CANCER
The Cancer Research Institute is dedicated to finding novel ways to harness the power of our own immune systems to conquer cancer.
National Bone Marrow Transplant Link
800-546-5268
www.nbmtlink.org
This site is designed to help patients, their caregivers and families understand and deal with the emotional and practical aspects of transplants and post-transplant concerns.
National Center for Complementary and Alternative Medicine
www.nccam.nih.gov
888.644.6226
International: 301-519-3153
For Hearing Impaired: 866.464.3615
This agency of the National Institutes of Health offers information, research, resources, and advisories on the use of complementary and alternative therapies to treat disease.
National Marrow Donor Program (NMDP)
www.marrow.org
800.MARROW2
(800.627.7692)
As the most comprehensive bone marrow and cord blood transplant resource, we work to provide hope and deliver a cure to all patients in need.
Oncology Associated of Naturopathic Physicians
www.oncanp.org
800.490.8509
The OncANP’s mission is to advance the philosophy, science and practice of naturopathic oncology.
FINANCIAL/LEGAL
CancerandCareers.org
www.cancerandcareers.org
This website, sponsored by Cosmetic Executive Women, is a resource and community for working women with cancer.
Cancer Legal Resource Center
www.lls.edu/academics/candp/clrc.html
866.THE.CLRC
The Cancer Legal Resource Center (CLRC) provides information and education on a broad range of cancer-related legal issues, including health insurance, employment, government benefits, estate planning, advance directives, family law and financial assistance.
DeAnna Favre HOPE Foundation
http:www.deannafavre4hope.com
Helps pay medical expenses for uninsured/under insured breast cancer patients.
The Healthwell Foundation
www.healthwellfoundation.org
Toll free: 800-675-8416
This foundation provides assistance to those who cannot afford insurance co-payments, premiums, or other healthcare costs.
Hill-Burton Free and Reduced Cost Healthcare
www.hrsa.gov/hillburton
Toll free: 800-638-0742
This program requires several U.S. medical facilities to provide free or low-cost care to eligible patients.
The Leukemia & Lymphoma Society (LLS)
www.lls.org
Toll free: 800-955-4572
The LLS financial aid program offers people with blood-related cancers up to $500 a year for drugs, travel, and treatment costs.
Limbs for Life
www.limbsforlife.org
Toll free: 888-235-5462 or 405-843-5174
Limbs for Life provides funding for prosthetics and prosthetic care for individuals who cannot otherwise afford it.
The Lance Armstrong Foundation
www.livestrong.org
Toll free: 866-467-7205
The LIVESTRONG SurvivorCare program offers information about financial, employment, and insurance issues.
Lymphoma Research Foundation (LRF)
www.lymphoma.org
Toll free: 800-500-9976
LRF offers up to $500 per year to lymphoma patients who have quality-of-life expenses not covered by insurance.
Making Memories Breast Cancer Foundation
www.makingmemories.org
This program grants wishes to patients with metastatic breast cancer so they may create lasting memories with loved ones.
National Association of Insurance Commissioners
www.naic.org
(816) 842-3600
The mission of the NAIC is to assist state insurance regulators, individually and collectively, in serving the public interest and achieving the following fundamental insurance regulatory goals in a responsive, efficient and cost effective manner, consistent with the wishes of its members.
National Brain Tumor Foundation (NBTF)
www.braintumor.org
Toll free: 800-934-CURE (2873)
National Breast and Cervical Early Detection Program (NBCCEDP)
www.cdc.gov/cancer/nbccedp
TTY: 888-232-6348
Toll free: 800-CDC-INFO (232-4636)
NBCCEDP provides free or low-cost breast and cervical screenings to women who meet age and income guidelines.
National Foundation for Transplants (NFT)
www.transplants.org
Toll free: 800-489-3863
NFT provides fundraising assistance and advocacy for transplant patients and their families.
National Insurance Consumer Help Line
www.iii.org
212-346-5500
Insurance Information Institute.
National Organization for Rare Disorders (NORD)
www.rarediseases.org
TDD: 203-797-9590
Toll free: 800-999-6673
NORD’s assistance programs help uninsured or under-insured individuals with rare diseases pay for needed medications.
NeedyMeds
www.needymeds.com
NeedyMeds provides information about programs that help patients with the costs of their prescription medications.
Partnership for Prescription Assistance
www.pparx.org
Toll free: 888-4PPA-NOW (477-2669)
This program helps patients receive medicines they need through public or private assistance programs.
Patient Access Network Foundation
www.patientaccessnetwork.org
Toll free: 866-316-PANF (7263)
This foundation provides financial support for out-of-pocket medication costs to treat several types of cancer.
Patient Advocate Foundation
www.patientadvocate.org
Toll free: 800-532-5274
Co-Pay Relief Program
www.copays.org
Toll free: 866-512-3861
This foundation helps with insurance, job retention and debt issues. Their co-pay relief program provides financial assistance to insured patients with certain cancers.
Patient Services Inc. (PSI)
www.uneedpsi.org
Toll free: 800-366-7741
PSI subsidizes health insurance premiums and pharmacy co-payments for people with rare disorders and some cancers.
Together Rx Access
www.togetherrxaccess.com
Toll free: 800-444-4106
Together Rx Access offers a free discount card to U.S. residents who do not have prescription drug coverage.
RESPITE CARE
National Adult Day Services Association
www.nadsa.org
800.558.5301
Shepherd’s Centers of America
www.shepherdcenters.org
800.547.7073
Shepherd’s Centers of America (SCA) is a network of interfaith community-based organizations that provide meaning and purpose for adults throughout their mature years.
HOSPICE CARE
Hospice Foundation of America
www.hospicefoundation.org
800.854.3402
This organization offers resources, information, and support for those interested in hospice care.
National Hospice and Palliative Care Organization
www.nhpco.org
English: 800.658.8898
Spanish: 877.658.8896
This site offers information on hospice care and a searchable database of hospice care providers.
TRAVEL
Air Charity Network
877-621-7177
http://aircharitynetwork.org/
Angel Flight America is a national network of seven autonomous regional members--arranges free flights of hope and healing by transporting patients and their families in private planes to hospitals for medical treatment.
National Patient Travel Helpline
800-296-1217
www.patienttravel.org
The NATIONAL PATIENT TRAVEL HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
ADVOCACY
National Coalition for Cancer Survivorship
877-622-7937
www.canceradvocacy.org/
The National Coalition for Cancer Survivorship is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.
Patient Advocate Foundation
www.patientadvocate.org
800.532.5274
This national, non-profit group helps patients resolve disputes with their insurers and handle financial and professional issues.
MAGAZINES, PERIODICALS, & ARTICLES
CancerWise
This online newsletter is published monthly by the University of Texas M.D. Anderson Cancer Center.
www.cancerwise.org
Coping with Cancer
Published by Media America, this magazine offers knowledge, hope, and inspiration to people affected by cancer.
www.copingmag.com
CURE: Cancer Updates, Research, and Education
Published by CURE Media Group, this quarterly magazine is free to people with cancer, survivors, and caregivers.
www.curetoday.com
Heal: Living Well After Cancer
Published by CURE Media Croup, this quarterly magazine focuses on issues of concern to survivors.
www.healtoday.com
I Can
Published by Hayward Group in England, this magazine, which can be viewed online, focuses on information issues and ideas for people affected by cancer.
www.ican4u.com
MAMM: Women, Cancer and Community
This bimonthly magazine focuses on the needs of women with breast and reproductive cancer.
www.mamm.com
PSA Rising
This news, information and support website is designed for people with prostate cancer and survivors.
www.psa-rising.com
Women and Cancer
Published by Omni Health Media, this print and online quarterly addresses cancer prevention, wellness and management topics for women.
www.womenandcancermag.org
Links to Cancer Fighter Newsletter Archives
STANDARDS & ACCREDITATION FOR CANCER FACILITIES
American College of Surgeons
www.facs.org
800.621.4111
Association of Community Cancer Centers
accc-cancer.org
301.984.9496
The Joint Commission
www.jointcommission.org
630.792.5000
The National Cancer Institute
cancercenters.cancer.gov/
301.435.3848